Monday, November 23, 2020

The difference between "intellectual disability" and "developmental disability"

By now, many of you know that "intellectual disability" (ID) is the new term for a low IQ—what we used to call "mental retardation". In recent times, many people use "intellectual disability" as an umbrella term for any deficit in a person's thought processes. However, this term is actually a diagnostic label for a certain type of developmental disability that slows down learning and logical thought processes. We need another label for those who excel intellectually but struggle with other skills such as social interaction.

The abbreviation "I/DD" is widely understood to stand for "intellectual and developmental disabilities". However, on websites and discussion forums a common example of a "developmental disability" that is not an "intellectual disability" is a physical disability such as being paraplegic. This contributes to a popular perception that autism is a form of intellectual disability. In fact, autism is another diagnostic label for a different set of mental deficits from the ones seen in intellectual disability. An "intellectually disabled" person's limitations stem primarily from deficits in the ability to learn concepts, such as reading, writing, arithmetic, and reasoning, whereas an autistic person's limitations are primarily due to problems recognizing social cues or processing language.

Many people have a perception that autism is a form of intellectual disability. This may be because, in practice, what limits the ability of people with ID to function in daily life are struggles with forms of communication or social activities that require problem-solving abilities that the rest of us take for granted; they often are unable to speak in full sentences or understand more complex social rules. Many autistic people are limited in similar ways, and so daily interactions between neurotypical people, autistic people, and those with ID have many of the same challenges. Statistically, a majority of autistic people do, indeed, have a below-average IQ, though it often is not low enough for them to be considered "intellectually disabled". However, many autistic individuals have an average, or even (as in my case) an above-average IQ. These individuals think quite logically and learn skills such as artistic or even mathematical abilities very quickly, but are delayed in developing language (even to the point of being completely nonverbal) or understanding social cues because the parts of the brain that are involved in those specific areas of functioning develop more slowly than typical. To truly understand the disabilities of people like me requires understanding the difference between the ability to learn concepts and the ability to communicate.

So, the "I/DD" community is not just a mix of intellectually disabled people with people in wheelchairs. It includes people who are quite intelligent and able-bodied but have deficits in other areas of adaptive functioning, such as communication and focus. If society wants to include people with I/DD, it needs to learn not just about the needs and limitations that can be seen at first glance, but the specific areas of help that people need to put the gifts that they have to practical use in solving humanity's problems.

Sunday, October 18, 2020

Despite my aide-dependent autism, I am a passionate web developer with a Ph. D. in physics from UC Davis, which I was able to earn because I had full-time protective supervision. While a graduate student researcher, my favorite part of the job was using my coding skills. When I graduated, I realized that I would rather be a software developer than an experimental physicist. I am currently developing and maintaining the website for Progressive Employment Concepts (PEC), an agency that opens doors to meaningful community and employment participation for adults with developmental disabilities. In addition to my work at PEC, I have volunteered as a web developer for the Yolo Interfaith Immigration Network (YIIN) and the nonprofit organization UPchieve.

In addition to maintaining and developing websites, I advocate for needed public education about Autism, especially on behalf of those of us with aide-requiring functional limitations, as well as how other medical conditions commonly co-occurring can interact with autism in a way that restricts our opportunities for full time employment.

With assistance ("supports"), I participated in the UC Davis MIND Institute's ACCESS Program. I also am a member of the Neurodiversity advocacy groups Yolo People First (YPF) and AASCEND. With support from Supported Life Institute (SLI), some friends and I co-founded "College Students and Professionals with Disabilities (CS&PD)". Our project went on to receive a grant from the State Council on Developmental Disabilities (SCDD) that funded the "Success in College Program". Please take the time to learn about the State Council on Developmental Disabilities (SCDD), UC Davis MIND Institute and other agencies helping people like me. Thanks.
 

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